Victoria Spillane
Interim COO, Crohn’s and Colitis Ireland
Inflammatory Bowel Disease (IBD), the umbrella term for Crohn’s Disease and Ulcerative Colitis, affects around 50,000 people in Ireland, yet remains one of the most misunderstood chronic illnesses.
These conditions cause persistent inflammation of the digestive tract, leading to symptoms such as severe abdominal pain, diarrhoea, fatigue, joint pain and weight loss.
IBD doesn’t discriminate by age. While most diagnoses occur between ages 15 and 35, we also see a second peak in later adulthood, and cases in children are rising. This means IBD can impact anyone at any stage of life, often striking during critical periods for education, career and family.
Hidden costs and stigma of living with IBD
Despite advances in treatment, there’s no cure for IBD, and its impact extends beyond physical health. A recent survey by Crohn’s & Colitis Ireland revealed that 52% of patients experienced a flare in the past year, and 35% reported stigma or unfair treatment. Alarmingly, 60% face financial hardship, spending over €3,000 annually on care, while nearly half delayed treatment due to cost. These figures underscore the urgent need for systemic change — from expanding medical card eligibility to recognising IBD under the Long-Term Illness Scheme.
The burden on our healthcare system is significant. Delays in diagnosis remain common, with 14% waiting more than a year for confirmation, and almost half presenting to A&E before being diagnosed. Beyond clinical care, mental health support and workplace accommodations are lacking, leaving many patients isolated and struggling to maintain wellbeing and employment.
IBD can impact anyone at any stage of life, often striking during critical periods for education, career and family.
Call for urgent action and inclusive support
This week marks Crohn’s and Colitis Awareness Week (December 1–7), an opportunity to challenge misconceptions and advocate for better supports. Crohn’s & Colitis Ireland is leading the charge with education campaigns, peer support groups and resources for patients and families. We’re calling for investment in specialist services, equitable access to healthcare and public facilities that accommodate hidden disabilities.Policymakers must prioritise IBD in national health strategies, employers must create inclusive workplaces and the public must stand with us to break the stigma. Together, we can ensure that living well with IBD becomes the norm — not the exception.
